Lecture, Presentation, Training materials
HemaFAIR Lecture 11 - Inside the Swiss Transplant Cohort Study App Ecosystem Quick Tour and Project Management Insights
This lecture, delivered by Dr Joana Borrego Pinto, explores the Swiss Transplant Cohort Study (STCS) app ecosystem and its role in supporting data collection, coordination and collaboration across transplant centres. The session provides a guided tour of the platform, presenting its architecture, core applications and user workflows, and shares practical project management insights from the development and long-term operation of a complex digital research infrastructure. Key challenges, governance approaches and lessons learned are discussed, offering valuable perspectives for researchers, data stewards and project managers involved in cohort studies and digital health environments.
Licence: Creative Commons Attribution 4.0 International
Keywords: European research projects, FAIR principles, HemaFAIR, Open Science, Research Data Management
Target audience: Researchers, Data Scientist, Data stewards, Data managers, Students
Resource type: Lecture, Presentation, Training materials
Version: 1
Status: Active
Prerequisites:
No prerequisites. This material is intended as a first introduction to the Biomedical Ontologies
Learning objectives:
-Describe the overall structure and purpose of the Swiss Transplant Cohort Study (STCS) app ecosystem.
-Identify the core applications and user workflows that support data collection and collaboration across transplant centres.
-Understand the key governance and coordination mechanisms required for managing a large-scale digital research infrastructure.
-Recognise common project management challenges in the development and long-term operation of cohort study platforms.
-Discuss practical lessons learned and best practices applicable to similar digital health and research data environments.
Date created: 2026-02-25
Date published: 2026-03-26
Contributors: Petros Kountouris
Scientific topics: FAIR data, Data management, Open science
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